Hmmm where do I start?
OK, Anna is back in Burlington and doing fine! Katie is still going strong on CPAP and continues to breathe on her own. Nicholas is NOT in Boston.
This morning when I got to the NICU one of the Neonatal Nurse Practioners approached me after receiving a call from the lab. Nicholas's blood culture from earlier in the week has started to grow a fungus. Most of these infections are rare and can be caused from central IV lines that are used for lots of fluids and nutrition. Bacteria can grow inside of the line and be pushed into the bloodstream. As of right now they believe they have figured out what has been causing all of his earlier in the week sickness by getting this result back this morning, so until he is now better from this infection he is still off feeds, getting another kind of antibiotic, and not going to have any surgery until 48hrs after discontinuation of treatment, probably 7-10 days from today. But as you can see things change real fast and who knows when he will end up in Boston, he does need to go though and by the way it sounds he needs the repair as soon as possible. Considering the new situation I think he looks good and his nurses say he has improved throughout the week, but this infection is slow to manifest.
So at 11:00am they cancelled Nicholas's trip and Surgery, flew Anna home and Louie was alone in Boston-Ricky went home yesterday as planned, Louie stayed since we thought Nicholas was going to sent on the return flight, and Grandpa Tony was leaving after work today to be with Louie in Boston. We cancelled all of that and I called Brittany so I had someone to go to Boston with to pick up Louie-Wow what a crazy day!
I would like to thank over and over again Ricky for going with his brother to Boston and being their to support him for Anna's surgery.
I would also like to thank Brittany for dropping everything at 11:30am today, picking me up in Vermont and driving to Boston to get Louie.
I hope you all have a great weekend and we will keep you updated on our precious children.
God Bless and be well.
Love,
Sarah, Louie, Anna, Katie, and Nicholas
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4 comments:
sarah and louie ,
we are so glad to see what great support and what great family you both have . You all are in our prayers and with all the love thats here for you and these beautiful babies they just have to be ok . Please remember we are here if you need someone to drive you to Boston or anything else . Love ya all Rich
Sarah ,Louie we miss you lots .....hope everyone gets better real soon they have lots of people to meet when you all come home to NY it's always nice to have family and great friends to be there for you and know we are here for you .hug the little ones for us please I'm so proud to have you guys as friends .Love Kristy ,Doug,Chris,Bryan
Sarah & Louie- You two are amazing people! Your ability to stay so positive is an inspiration to many.Please remember your whole family is constantly in the prayers of many across the country.Moms & Dads all over are pulling for your little ones.Keep good thoughts and know you are not alone.Take care of yourselves, too.Thank You for the updates, Sarah & Gretchen it is great to see the miracles in progress.
We love you all so much, thinking and praying for you all and especially Nicholas. Uncle Tony + Aunt Sher
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