It has been a while and I am sorry for the delay in the updates-life has been a little busy lately.
I am currently in the hospital with Katie at Adirondack Medical Center in Saranac Lake she is here for a few more days and will then be sent to Fletcher Allen Hospital in Vermont for airway and throat testing. Katie is suffering from lots of airway and throat inflammation and because of this has had some difficulty eating. The testing she will have will determine if she will require a surgically placed stomach feeding tube so her airway and throat can heal. Katie has been suffering with this issue since she was still a patient at Fletcher Allen NICU and unfortunately is still struggling every day. The doctors believe this inflammation in her airway and throat is a direct result from having a nerve stunned that controls vocal chord function during her heart surgery in Boston, and severe acid reflux. There is so much involved with the nerve that got stunned and throat function that I just can't keep up. The good news is that Katie is gaining weight and generally acts quite happy considering the constant discomfort she must be in. She is an absolute angel and is loved more than life itself. So off we go back to Vermont for the next couple weeks I expect.
Nicholas and Anna are doing very well at home thank goodness! It is hard having us split up but necessary. I miss the kids so much when I leave. Louie is home with Nicholas and Anna and we have help from our family all the time. It takes a small Army to take care of three kids-trust me!!!
Nicholas is such a love, as long as he is fed and changed he just looks around and smiles or sleeps. I always expected Nicholas to be a handful (as everybody told me boys are) for some reason but he has also proved me wrong. He is wonderful and a super snuggler.
Now Anna is the exact opposite of what I expected ! LOUD LOUD LOUD...I always imagined Anna just quiet and peaceful but she loves to scream out and cry. She has alot of personality and big smiles but loves to hear her own voice. The kids look so much alike, especially the girls but all act so different which I just love.
My children are wonderful miracles and keep us all very very busy! I do not sleep often but it is all worth it. I always remind myself how lucky we were to have brought my 24 week triplets home from the hospital and that all these little "bumps" that we are currently going through will soon be a memory just like the previous months we just went through. We are very blessed and prayers were answered over and over again.
Louie and I would like to send out another huge set of THANK YOU's for all the gifts we have been receiving and for all the prayers and warm wishes we get sent every day! Please know again that nothing goes unnoticed and we are just so blessed to have all the support and encouragment that we have. We are FOREVER THANKFUL for ALL OF YOU!!!
So Katie and I are off to Vermont and I will keep updating as we go. I hope you are all doing well and please know how much we appreciate all of you for being here for us. God Bless and be Well!!!
Love,
Sarah, Louie, Anna, Katie and Nicholas.
More PICS to come soon!
9 comments:
lots of love to kaite our prayers and thoughts are with u all shes a fighter and hopfuly things will be better for her soon...glad that anna and nicholas are doing good and home with daddy...sarah if u need anything while ur over there with katie let us know please were more than willin to help same with loui let him know...love sarah cliff nathan shawn and keegan.
Hi Sarah,Louie,Anna,Nicholas&Katie
Larry & I have you in our thoughts often.I bet you are pretty tired with lack of sleep taking care of Anna, Nicholas & Katie. But what a very strong family unit and what better parents to pass so much love and strenght to your babies.
Let us know if there is anything we can do to help out. Sarah know that I am sending my hugs to you everyday. You should be receiving a package soon.
Love Gail & Larry
Thinking of you every day!! We miss you so much, love you more, and send many, many prayers your way!
Let us know if you need anything in VT! Hugs & Kisses - Gretchy and Mark!
The fighting five are at it again. Sarah and Katie toghter you can do this with the support of the other three fighting at home everyday. Keep going and stay strong these are long days, oh, and nights, but it will behind you soon. Never thought I could be a full time Mom at my age, but with alot of hair dye, I have done well if I do say so myself. Love Lorraine Mihill
Hi Sarah, I miss taking care of the "A-team!" I think of you guys often. You must be loving the time spent with your little miracles. Sorry to hear that Katie has continued having issues. But she is a fighter as we already know! Maybe I'll get to see you back at Fletcher Allen. Take care and keep us informed with the updates!
Luv, Sara (NICU night nurse)
Sarah, We have and will continue to pray for your children.I LOVE writing that. I am soooo happy they are thriving.You are so right,these are just bumps in the road. The twists and curves will continue.... 3 children will always keep you hopping. But JOYFULLY !!! Take Care.
Sarah,
Let me know if you or Katie need anything here in VT!! I am at FAHC a lot, a you know :-)
Christie (L&D)
Katie just wants one-on-one time with her Mommy, thats all!! Silly girl, she's a smart one!! Seriously though, I have known 2 separate babies that needed stomach tubes & it worked wonders for both of them! Everything will work out, that I'm sure. I can't believe how big they have gotten!!! I can not imagine having to take care of three wee ones... You were chosen for this because He believed you could handle the task! Good luck and keep us posted!
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